Tasha Chemel, a recent graduate from the Harvard Graduate School of Education, who has LCA, is the recent recipient of an Educational Entrepreneurship Fellowship from Harvard. She is seeking information about people with severe early onset retinal disease and the treatments available to them.
Kaleigh Brendle won the Freehold Idol 2015 talent competition. Talented singers aged 10 and older were given the spotlight to show off their vocal abilities in this very popular annual singing contest that draws contestnats from all over NJ, NY, PA and even Boston.
Inherited retinal degenerations (IRDs) encompass a large group of clinically and genetically heterogeneous diseases that affect approximately 1 in 3000 people (.2 million people worldwide) (Bessant DA, Ali RR, Bhattacharya SS. 2001. Molecular genetics and prospects for therapy of the inherited retinal dystrophies.